A Boy with CF: His Story of Acceptance and Endurance After all his fun

After all his fun

At 6 weeks old she was diagnosed with a very rare genetic condition called infantile onset Pompe disease (IOPD)

She brought joy and laughter to all who spent time with her

including an autopsy

and in fact

A Boy with CF: His Story of Acceptance and Endurance After all his funTrent is an 8 year old boy who was born with Cystic Fibrosis, or CF. His favorite things to do are playing football and building things out of legos. Growing up with CF means going in and out of the hospital a lot. Its not always fun because he has to take a lot of different medicine. Sometimes he feels sad because he doesn't feel normal. But Jesus builds him up to make him strong. Thats why he and his family started a CF Foundation called TJAE CF