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It also may include provisions that indicate what happens to the funds remaining in the trust (if any) after your child passes away. Monika Jones, an attorney who founded The Brain Recovery Project to initiate and fund research on hemispherectomy and childhood drug-resistant epilepsy, cautions that both first-party and pooled trusts often contain a payback provision: if the beneficiary passes away, any remaining money in the trust can be used by the government to cover any Medicaid expenses that were incurred

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